Links

 

Our Lives Are Forever Changed Because Our Child Has A Heart
General Medical Information:

Medline Plus - A service of the U.S. National Library of Medicine and the National Institutes of Health. The site contains a medical encyclopedia, current health news, and drug information on various health information.

KidsHealth - Provides children, teens, and parents with up-to-date information on health information.

The Cardiovascular Pathology Index - Offers a tutorial and image of hearts with various diseases and conditions.

The Echocardiography Journal - Contains articles and cardiac ultrasound images.

General Pediatrics:

The American Academy of Pediatrics - Offers current updates, resources and research information for pediatric conditions.

General Pediatrics - Offers resources for professionals and patients on common pediatric health problems.

Congenital Heart Disease Online Handbook - Offers a guide to various diseases as well as the medicines and surgical procedures used to treat these conditions.

University of Kansas Medical Center-Pediatric Cardiology - A compilation of 25 congenital heart defect diagrams.

Heart to Heart International - The mission of Heart to Heart International is to facilitate a network between physicians and hospitals in the United States to provide care for children from developing countries who have congenital heart defects.

American Heart Association - Information page on "Children and Heart Disease"

American Heart Association - Information page on "More Questions for the Pediatric Cardiologist"

CHASER, Inc. - Provides financial, educational and emotional resources for families dealing with Congenital Heart Anomalies.

PDHeart - Information Network's online support group. The forum is for all those who are affected by congenital heart disease.

Children's Heart Society - A non-profit organization that seeks to educate, support and improve the quality of life for those affected by heart disease.

Heart and Coeur - Contains "The World Engine Search in Cardiology" which has links, forums and current updates from international sites (mostly French).

Adult Congenital Heart Association - List of camps for children with Congenital Heart Disease.

Fetal Echocardiography Homepage - Contains helpful links, a discussion forum, and a library of images related to Fetal Echocardiology.

Prophylactic Antibiotics in Children - Contains information on Prophylactic antibiotics in children.

Congenital Heart Disease on the World Wide Web - Dedicated to teaching, diagnosis and treatment of heart disease through case studies.

Franklin Institute - Offers information and diagrams on exploring the Heart. Browsers can learn about heart structure and development, as well as helpful tools that enable them to examine their own health.

Heart Line Association - Images and information provided through Heart Line Assoc., a British registered charity.

Congenital Heart Surgery:

Congenital Heart Surgeons' Society - A group of 80 surgeons who meet once a year to discuss conditions, procedures and treatment of children with congenital heart disease.

The Society of Thoracic Surgeons - "Help Cardiothoracic Surgeons Serve Patients Better"

Adult Congenital Heart Association - Adults with congenital heart defects.

Arrhythmias:

The North American Society of Pacing and Electrophysiology - Contains heart rhythm information and resources for patients, members, professionals and the public.

Sudden Arrhythmia Death Syndrome Foundation - Seeks to save lives and support children and families who are at risk to sudden death caused by heart rhythm abnormalities.

Cardiac Arrhythmias Research and Education Foundation - Seeks to raise awareness and funding for children and young adults with inherited heart disorders. The site offers information for patients, medical professionals, and the public about various heart disorders, such as Long Q-T.

National Heart, Lung & Blood Institute - Guide to the definition, causes, symptoms, tests and treatments for arrhythmias.

Syndromes Associated with Congenital Heart Defects:

The Noonan Syndrome Support Group - Provides information and support for those whose lives have been affected by Noonan Syndrome.

The Williams Syndrome Comprehensive Web Site - Facilitates development programs in fundraising and support for people who have Williams Syndrome and other related conditions.

Turner Syndrome Society of the United States - Seeks to raise awareness and support for women and girls affected by Turner Syndrome, as well as their families.

National Marfan Foundation - Aims to increase education and support for Marfan Syndrome. NMF has a national volunteer network, information on research and related disorders, and updates on upcoming conferences and events.

Down Syndrome - Contains helpful links and resources related to Down Syndrome.

Gene Reviews - Information on the disease characteristics, diagnosis, and testing for the 22q11.2 Deletion Syndrome.

CHARGE Syndrome Foundation - Addresses specific birth defects, including heart defects.

Other Pediatric Cardiology Related Links:

Kawasaki Families' Network - Exists to share information, support, and links with those affected by Kawasaki Syndrome.

Hypertrophic Cardiomyopathy Association - Provides a network of support for patients, families, and healthcare professions affected by hypertrophic cardiomyopathy.

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